Autoimmune Hepatitis Group encourages its members to “share thoughts, concerns, questions, links, new treatment methods, pictures of … Autoimmune refers to the body’s own immune system attacking another part of the body. Why Are They Used? Please note that if you add someone to this group, they MUST answer the screening question in order to be approved. The exact cause of autoimmune hepatitis is unclear, but genetic and environmental factors appear to interact over time in triggering the disease. 0. 1. Symptom, treatment and advice from community members so I also use steroids during flares. If your GP suspects that you have a liver disease after initial tests then they will refer you to a specialist for further investigations. Blood tests. Here’s how your baby’s growing in your body each week. Blood work as well. These common ADD/ADHD myths could already be hurting your child. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. Diagnosed with: autoimmune hepatitis. The doctors were baffled as i lay in my hospital bed after five days of, not only me but my doctors not knowing why my body was shutting down? The chronic inflammation gradually damages the liver cells, which can result in serious problems. The best way to describe this disease is to break the term down into its composite words. Amy Caffrey. :). The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. Living clean alone, though a big step in the right direction, will not fully manage your disease. Waiting4aMiracle. I really need some help, I recently developed cirrhosis and I don't know what to do. Day five i was taken for a liver biopsy, they took two samples and the next morning the liver docs came in and told me i had aih. Picture... 07/05/2018 : billibirium: 4.7 sgpt 2434 We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. There are over 80 different autoimmune diseases, ranging from common to very rare. Learn about the types, causes, risk factors, symptoms, diagnosis, treatment, and complications of autoimmune hepatitis. By using this Site you agree to the following, By using this Site you agree to the following, This patient support community is for discussions relating to, 2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder, TMJ – What a Pain in the Neck! (The specialist that you are likely to see is a Gastroenterologist who deals with diseases of the digestive tract. Im so sorry to hear what you're going through as im there and im sick of the quacks and i feel like an experiment with their pills and crappy advice, oh, that's if they care enough to give it! Studies are showing connections between world trade center exposures in 2001-2002 and peripheral neuropathy, autoimmune illnesses and liver and kidney problems. People often have two or more autoimmune conditions or start with a single diagnosis and develop more. Doctors perform a liver biopsy to confirm the diagnosis and to determine the degree and type of liver damage. Two days later, I was on the mobile to my best mate when I dropped to the ground clutching my right upper side and dizzy as, so i rang my daughter who rushed me to my local hospital where I was put in a ward asap, on a drip blood tests n monitors all over me, I've never been so afraid for my life ever! AIHA has helped me prepare for my hepatologist appointments with informed questions about diagnostic tools and treatment options. A support community for people affected by autoimmune disease. Dr. Autoimmune Hepatitis Testimonials (Coimbra Protocol) Autoimmune Hepatitis is a liver inflammation that occurs when your body's immune system turns against liver cells. Dr. Jama Darling talks about autoimmune hepatitis, the importance of liver biopsy, how it is different from other types of hepatitis, and treatments of the disease. You should be. Thanks again. Patient Forums for Autoimmune Disorders. How do you determine if this hepatitis is autoimmune or EBV re-infection? AIH SUPPORT | Help for those affected by autoimmune hepatitis The Covid-19 situation continues to change and ‘shielding’ is paused in UK but AIH patients should still keep abreast of guidance from the devolved governments in UK. Immune, Inflammatory and Infections Forum. Chronic means that the inflammation is persistent or long-term. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. ARRC does this by providing education, support and undertaking innovative research to help solve the mysteries surrounding these illnesses. Especially with having multiple AI diseases, you really should be. There is no need to be scared - it's more of an inconvenience than an illness I would say. The biggest one, AutoImmune Hepatitis Support Group, has over 6,500 active members and was founded by an AIH patient. This group is open to patients, family members and carers affected by a rare, genetic or autoimmune liver condition. Hepatitis refers to inflammation of the liver, which can range from mild to severe. Don't understand the whole thing , but at least I can look up stuff I don't understand and ask more informed questions later. ... British Liver Trust has a page all about Autoimmune Hepatitis at: ... eat healthily, keep reading this and the FB forums, you will soon get used to it. 12/06/2018. Darling is an Assistant Professor of Medicine in the Division of Gastroenterology and Hepatology. Many AIHers live perfectly normal lives (even with some scarring/cirrhosis) as long as they can avoid flares. We offer this Site AS IS and without any warranties. Had my gallbladder removed after my son was born 1979. it was badly infected and my appendix was also removed at same time also infected. I'm sure what the doctors meant by "you will not get better" is that there is no cure. 29/05/2018: bilibirium: 0.8 sgpt 120 normal range 12-78 Amy Caffrey 07824 056686 amy.caffrey@britishlivertrust.org.uk. The diagnosis of autoimmune hepatitis is based on the elevation of immunoglobulin G/hypergammaglobulinemia, detection of characteristic autoantibodies as well as a typical pattern on liver histology. Hi Milly, whilst you'll get some good support on here. Autoimmune diseases are a broad range of related diseases in which a person’s immune system produces an inappropriate response against its own cells, tissues and/or organs. I have been getting copies of scans and MRI for the past 8 years . This group is Private and requires approval from the admin for membership. The Autoimmune Resource & Research Centre is dedicated to helping people living with autoimmune illness reach their full life potential despite having chronic illness. And then, they do more tests and tell her that she might or might not, etc. Autoimmune hepatitis is liver inflammation that occurs when your body's immune system turns against liver cells. Ever since I got aih ive had to battle through it all basically without knowing what to do if something related to aih were to happen, which it did on many occasions but noooo my local GP told me to talk to the liver doc and vice versa and other symptoms arising then sent home from an appointment with my liver doc who tells me to go down to 75mg with my imuran only to find when I get home that im already on 75mg wth?? 2. Learn about diagnosis, treatment, and management for complex and invisible illnesses. “Elegant Ecology”. In some people AIH develops quickly and symptoms and signs like nausea, fevers, abdominal pain, muscle pain and jaundice rapidly develop. Following is a summary of my medical case. Support Forums > Hepatitis ... She has been told she has autoimmune hepatitis, lupus, and RA. Tanada, are you on specific medications for AIH? These diseases can be localised to a single organ or tissue, or generalised (systemic), … Details for those people with AIH in the UK can be found here: UK government covid-19 information Liver biopsy. The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. Tests and procedures used to diagnose autoimmune hepatitis include: 1. Im sorry if ive gone on a bit but im a human being and deserve no different treatment than any other patients! It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Autoimmune hepatitis is a disease characterized by chronic inflammation of the liver. Edinburgh Genetic/Autoimmune Liver Support. I too have cirrhosis and like with your hubby autoimmune hepatitis was the underlying cause. Autoimmune hepatitis (AIH) means your immune system attacks your liver cells. I am now being prescribed beacuase my liver enzymes are under control but bump up when they try to get me off prednisone? from operation. The cause of liver cell destruction in this disease is unclear, but may be related to an imbalance in some of … It's now April 2014 and i have never felt so alone, yes, alone! The best thing is to get an autoimmune disorder stable with minimal flares. To read or print a fact sheet please click on the fact sheet of interest below: Uveitis_brochure Fibromyalgia juvenile_dermatomyositis Myasthenia Gravis Polymyalgia Rheumatica Thyroid-graves Thyroid_Hashimotos Uveitis_factsheet Vasculitis Lichen Sclerosus Fact Sheet For more illness specific information please go back to the complete Health Information Factsheet List Any one had any experiance with profar?? ... Several of us are New York-based so we formed a Facebook support group and get together to compare symptoms, medications, and life in general. Subscribe to MedHelp's free newsletter for Community Support, Experience, and Guidance. What were the results of your liver blood test? New Post. Thanks so much for this bit of information! Last Reply: jane45610 02/08/2016. In October 2008, I was put on 60mg of Prednisone after liver biopsy revealed a rapid progression from an earlier biopsy, I now had non-al... For people with Obsessive-Compulsive Disorder (OCD), the COVID-19 pandemic can be particularly challenging. This is Episode Six of "Autoimmune Disease: Pieces of the Picture." I wanted to start a discussion for those of you out there suffering with Autoimmune Hepatitis. I had never heard of it and there was so much to take in. What was the cause of your elevated liver blood values? AUTOIMMUNE HEPATITIS SUPPORT NEEDED - Autoimmune diseases. IMPORTANT: 1) DO NOT BLOCK ADMINS OR MODS OR YOU WILL BE BANNED. Dr. said it was probably just scar tissue. This results in inflammation and damage. Some Gastroenterologists specialis… If your AST or ALT blood levels were elevated at one time or now, please share yo... Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO, Helping People With OCD During The COVID-19 Pandemic, A Peek Inside: 5 Amazing Fetal Development Photos. I have MS also a autoimmune disorder. 0. Post Edited By Moderator (hep93) : 9/5/2013 7:10:24 PM (GMT-6), Note I answered a thread from someone have right side pain and normal labs, and was asked to repost it because of some of the info I shared....I hope it helps someone sooner then later. Also, you should be on Lactulose and possibly Xifaxan for the toxins. Glasgow Genetic/Autoimmune Liver Condition Support. I am a 40 year old mother of 3. The group runs quarterly from 6-8pm at: Double Tree Hilton, 36 Cambridge Street, Glasgow G2 3HN. Autoimmune Hepatitis type 2. Posted by: VioletOwens. ... ok i know im only 15 and i was diagnosed with Autoimmune hepatitis and if u really want a good way to figure out if u have it get a biopsy they took blood over and over and tested me for that and come up neg. - What Should I Know about Liver Blood Tests? Join a Community of Support Become a member of the Autoimmune Hepatitis Association and find support from people just like you. Autoimmune hepatitis is an uncommon cause of chronic hepatitis. ...ur experience with diagnosis of the cause and treatments. Hello, I was diagnosed with aih early November last year, and I have not been myself health wise for up to three years prior. Get updates on the latest research and first access to educational content, events, and research opportunities. In others the symptoms are more vague such as tiredness and general fatigue and develop over time. After that I had a cramp on my right side every time I lifted anything heavy, mowed the lawn or just stretched. Nice to meet you all and thank you. Especially already having some cirrhosis, you want to avoid any inflammatory processes in the future that could lead to more cirrhosis. This article will tell you more about strength training at home, giving you some options that require little to no equipment. Your 'healthier' living is great but I have strong doubts it'll stop you from flaring if your immune system does freak out again. National Coalition of Autoimmune Patient Groups (NCAPG) Founded and facilitated by AARDA, the mission of the NCAPG is to convene, support, and amplify the voice of autoimmune disease patients and autoimmune patient groups to enhance capacity, collaboration, and impact through advocacy, education, awareness, and research concerning all aspects of autoimmune disease. That’s where the Autoimmune Hepatitis Association has come in, with a wealth of information resources and online support forums. Testing a sample of your blood for antibodies can distinguish autoimmune hepatitis from viral hepatitis and other conditions with similar symptoms. I went to my local GP regularly complaining of feeling sick and my upper right side (my liver area) would blow outwards and cramp up to the point of not knowing what to do, the pain is terrible but they kept saying its just a bowel blockage, and I was literally going insane begging my doctor, then finally last year around mid September, i went to my doc feeling quite sick and lethargic again, and usually with a temperature. Are you on any immunosuppressants? Always ask fore a copy of all reports. Part of the Heart Health category. In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke. Meets quarterly from 6-8pm in the Holiday Inn Express, Royal Mile, Edinburgh 300 Cowgate, Edinburgh EH1 1NA. November 30, 2012 at 12:29 am; 76 replies; TODO: Email modal placeholder. Autoimmune hepatitis (AIH) is a non-contagious, chronic, inflammatory, autoimmune disease in which one’s own immune system attacks healthy, normal liver cells. Posted: 01/04/2017. Antibody tests also help pinpoint the type of autoimmune hepatitis you have. Exclusion of other causes of hepatitis and response to immunosuppressive treatment support the diagnosis of autoimmune hepatitis. something you might want to look into if you were exposed. Tanada, thanks so much for the heads up eh! It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. AutoImmune Hepatitis Support Group has 6,769 members. I feel like im being treated like an idiot, i have concerns but they dont care cos im not allowed to speak to any of them, including my doc and I'm not the only one! Posted by: superchick601. I am a cancer person with breast and bone cancer and I have a high liver count. Well I just suffered along for about, In answer to what mg im on with imuran is 75 and going down Tuesday. I also will spread the word among friends and family to always get tested! 177456 members 8k+ posts | 2k+ topics Recent Topics. The Smart Patients autoimmune community is a safe place to share information and support with other patients and family members dealing with autoimmune problems. Hepatitis Autoimmune Community This patient support community is for discussions relating to autoimmune hepatitis. Broken Arrow, you found us likely via a search engine and posted in on a old thread. My doc gave me a written report to get me to my local hospital within two weeks, he suspected a stomach ulscer?? Autoimmune Hepatitis Support Group. I went home feeling so down and medically neglected i thought it was all over and nobody in the medical profession cared! The exact cause of autoimmune hepatitis is unclear, but genetic and enviromental factors appear to interact over time in triggering the disease.Untreated autoimmune hepatitis can lead to scarring of the liver (cirrhosis) and eventually to liver failure. This group is open to anyone affected by a rare, genetic or autoimmune liver condition and is open to patients and family members. I finally went for an MRI which showed something sort of glowing. Support. Glasgow Hepatitis C Support It's a safe forum where you can create or participate in support groups and discussions about health topics that interest you. A list of national and international resources and hotlines to help connect you to needed health and medical services. She also has had Lyme disease which somehow, and I don't know how, plays into these autoimmune family of conditions. Î'm also on 5mg of predniselone and my hairs falling out and i go to the toilet frequently, but when i see any doctor about. 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